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COVID-19 Related Challenges and Advice from Parents of Children with Autism Spectrum Disorder

China I. Parenteau, Stephen Bent, Bushra Hossain, Yingtong Chen, Felicia Widjaja, Michael Breard, Robert L. Hendren

Abstract


With the rise of the COVID-19 pandemic and shelter-in-place, families with children with autism spectrum disorder (ASD) face a unique set of challenges related to a diverse set of issues. A qualitative study was conducted in the form of semi-structured interviews from fifteen parents of children and adolescents from a non-public school for children with ASD. Questions covered the following topic areas: general COVID-19 experiences and concerns, changes in the child’s mood and behavior, changes in parent mood and behavior, and coping/advice. Quotes and descriptions from the participants were reviewed and grouped into thematic areas. Findings showed that parents of children with ASD are facing a wide range of challenges, including explaining COVID-19 and safety precautions to their child in a comprehensible way, assisting with e-learning, and guiding their child back into social situations and the community. As children with ASD have difficulties with transitions, parents stated the importance of creating structure in the home by creating schedules and boundaries, while allowing for flexibility as to not over enforce the rigidity children with autism often face. Advice on coping with the additional stressors were also shared. Parents recommended finding time for themselves to reset, utilizing support systems, and reflecting on daily pleasures as positive coping mechanisms. This study aimed to both develop an initial guide for families, teachers and clinicians caring for children with ASD and to create awareness in the community about the challenges presented by COVID-19 and shelter-in-place.


Keywords


Autism Spectrum Disorder; Coronavirus; E-learning; Parental Coping; Parenting Stress; Shelter-in-place.

References


Pfefferbaum, B., & North, C. S. (2020). Mental Health and the Covid-19 Pandemic. New England Journal of Medicine, 383(6), 510–512. doi:10.1056/nejmp2008017.

Yao, H., Chen, J.-H., & Xu, Y.-F. (2020). Patients with mental health disorders in the COVID-19 epidemic. The Lancet Psychiatry, 7(4), e21. doi:10.1016/s2215-0366(20)30090-0.

Lord, C., Elsabbagh, M., Baird, G., & Veenstra-Vanderweele, J. (2018). Autism spectrum disorder. The Lancet, 392(10146), 508–520. doi:10.1016/s0140-6736(18)31129-2.

Masi, A., DeMayo, M. M., Glozier, N., & Guastella, A. J. (2017). An Overview of Autism Spectrum Disorder, Heterogeneity and Treatment Options. Neuroscience Bulletin, 33(2), 183–193. doi:10.1007/s12264-017-0100-y.

Eshraghi, A. A., Li, C., Alessandri, M., Messinger, D. S., Eshraghi, R. S., Mittal, R., & Armstrong, F. D. (2020). COVID-19: overcoming the challenges faced by individuals with autism and their families. The Lancet Psychiatry, 7(6), 481–483. doi:10.1016/s2215-0366(20)30197-8.

Sterling-Turner, H. E., & Jordan, S. S. (2007). Interventions addressing transition difficulties for individuals with autism. Psychology in the Schools, 44(7), 681-690. doi:10.1002/pits.20257

Flannery, K. B., & Horner, R. H. (1994). The relationship between predictability and problem behavior for students with severe disabilities. Journal of Behavioral Education, 4(2), 157–176. doi: 10.1007/bf01544110.

Henley, M. (2006). Classroom management: A proactive approach. Upper Saddle River, NJ: Pearson Merrill Prentice Hall.

Slavin, R.E. (2003). Educational psychology: Theory and practice. (7th ed.). Boston, MA: Allyn and Bacon

Groden, J., Cautela, J., Prince, S., & Berryman, J. (1994). The impact of stress and anxiety on individuals with autism and developmental disabilities. In E. Schopler & G. B., Mesibov, (Eds.), Behavioral issues in autism (pp. 178–190). New York: Plenum Press.

Kim, J. A., Szatmari, P., Bryson, S. E., Streiner, D. L., & Wilson, F. J. (2000). The prevalence of anxiety and mood problems among children with autism and Asperger syndrome. Autism, 4, 117–132.

Leyfer, O. T., Folstein, S. E., Bacalman, S., Davis, N. O., Dinh, E., Morgan, J., et al. (2006). Comorbid psychiatric disorders in children with autism: Interview development and rates of disorders. Journal of Autism and Developmental Disorders, 36, 849–861.

Weisbrot, D. M., Gadow, K. D., DeVincent, C. J., & Pomeroy, J. (2005). The presentation of anxiety in children with pervasive developmental disorders. Journal of Child and Adolescent Psychopharmacology, 15, 477–496.

Estes, A., Olson, E., Sullivan, K., Greenson, J., Winter, J., Dawson, G., & Munson, J. (2013). Parenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders. Brain and Development, 35(2), 133–138. doi: 10.1016/j.braindev.2012.10.004.

Maljaars, J., Noens, I., Scholte, E., & Berckelaer-Onnes, I. V. (2012). Language in Low-Functioning Children with Autistic Disorder: Differences Between Receptive and Expressive Skills and Concurrent Predictors of Language. Journal of Autism and Developmental Disorders, 42(10), 2181–2191. doi: 10.1007/s10803-012-1476-1.

Ali, S., & Frederickson, N. (2006). Investigating the Evidence Base of Social Stories. Educational Psychology in Practice, 22(4), 355–377. doi: 10.1080/02667360600999500.

Gray, C. A., & Garand, J. D. (1993). Social Stories: Improving Responses of Students with Autism with Accurate Social Information. Focus on Autistic Behavior, 8(1), 1–10. doi: 10.1177/108835769300800101.

Dyson, M. (2020). Tips for Talking With Your Child With Autism About the Coronavirus. Retrieved May 19, 2020, from https://childmind.org/article/tips-for-talking-with-your-child-with-autism-about-the-coronavirus/.

Schreibman, L., Whalen, C., & Stahmer, A. C. (2000). The Use of Video Priming to Reduce Disruptive Transition Behavior in Children with Autism. Journal of Positive Behavior Interventions, 2(1), 3–11. doi: 10.1177/109830070000200102.

Stoner, J.B., Angell, M.E., House, J.J. et al. Transitions: Perspectives from Parents of Young Children with Autism Spectrum Disorder (ASD). Journal of Developmental and Physical Disabilities 19, 23–39 (2007). https://doi.org/10.1007/s10882-007-9034-z.

Bauminger, N., & Kasari, C. (2000). Loneliness and Friendship in High-Functioning Children with Autism. Child Development, 71(2), 447–456. doi: 10.1111/1467-8624.00156.

Poljac, E., Hoofs, V., Princen, M.M. et al. Understanding Behavioural Rigidity in Autism Spectrum Conditions: The Role of Intentional Control. Journal of Autism and Developmental Disorders 47, 714–727 (2017). https://doi.org/10.1007/s10803-016-3010-3.

Degrace, B. W. (2004). The Everyday Occupation of Families With Children With Autism. American Journal of Occupational Therapy, 58(5), 543–550. doi: 10.5014/ajot.58.5.543.

Larson, E. (2006). Caregiving and Autism: How Does Childrens Propensity for Routinization Influence Participation in Family Activities? OTJR: Occupation, Participation and Health, 26(2), 69–79. doi: 10.1177/153944920602600205.

Kennedy, D. P., & Adolphs, R. (2014). Violations of Personal Space by Individuals with Autism Spectrum Disorder. PLoS ONE, 9(8). doi: 10.1371/journal.pone.0103369.

Ornitz, E. M., & Ritvo, E. R. (1976). The syndrome of autism: a critical review. American Journal of Psychiatry, 133(6), 609–621. doi: 10.1176/ajp.133.6.609.

Pottie, C. G., & Ingram, K. M. (2008). Daily stress, coping, and well-being in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology, 22(6), 855–864. doi: 10.1037/a0013604.


Full Text: PDF

DOI: 10.28991/SciMedJ-2020-02-SI-6

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